Run for the Rare 2022!

Haley’s Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 27, 2022.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run anywhere! Run any distance! Run at any time! Post pictures at #RUNFORTHERARE!.

 

 

 

 

Run for the Rare!

**Update** Due to the recent storms around the Pacific Northwest we have opted to move this event to be a 100% Virtual Event! You can still sign up and run or walk the event at any location, even on the treadmill!!

Haley’s Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk on National Rare Disease Day, February 28, 2021.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run anywhere! Run any distance! Run at any time! Post pictures at #RUNFORTHERARE!

Join Melissa for a socially distance in-person 5k run or walk at Salem Riverfront City Park at 10:00am on Sunday, February 28th.

Cost is $35 and includes a fun Run for the Rare t-shirt! You can pick up your t-shirt at the start of run or at the Haley’s Heroes Foundation office. ConKraft Construction – 1805 22nd St SE, Salem, OR 97302 Salem, Oregon 97302. For $5.00 your t-shirt can be mailed to you.

Register now! 

 

 

Faces of Batten Disease CLN1