In 2024, Run for the Rare is moving to June 9th. This is International Batten Disease Awareness Day! We are excited to run/walk and fundraise in warmer weather!
Haley’s Heroes Foundation presents RUN FOR THE RARE, a 10k, 5k or 1 mile run or walk to support International Batten Disease Awareness Day. Did you know that Rare is everywhere? So, let’s run or walk everywhere! 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run or walk anywhere! Run or walk any distance! Run or walk at any time! Post pictures at #RUNFORTHERARE!. You can run with us or choose a virtual run!!
The run will begin and end by the Pavilion in the North Meadow of the Riverfront City Park!
REGISTER NOW!
Haley’s Heroes Foundation presents RUN FOR THE RARE, a 5k or 1 mile run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 26, 2023. 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run or walk anywhere! Run or walk any distance! Run or walk at any time! Post pictures at #RUNFORTHERARE!. You can run with us or choose a virtual run!!
The run will begin and end by the pavilion in the North Meadow of the Riverfront City Park!
Register Now!
Haley’s Heroes Foundation presents RUN FOR THE RARE, a 5k & 10k run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 27, 2022. 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run or walk anywhere! Run or walk any distance! Run or walk at any time! Post pictures at #RUNFORTHERARE!. You can run with us or choose a virtual run!!
The run will begin and end by the pavilion in the North Meadow of the Riverfront City Park!
Registration is open!
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE
**Update** Due to the recent storms around the Pacific Northwest we have opted to move this event to be a 100% Virtual Event! You can still sign up and run or walk the event at any location, even on the treadmill!!
Haley’s Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk on National Rare Disease Day, February 28, 2021. 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run anywhere! Run any distance! Run at any time! Post pictures at #RUNFORTHERARE!
Join Melissa for a socially distance in-person 5k run or walk at Salem Riverfront City Park at 10:00am on Sunday, February 28th.
Cost is $35 and includes a fun Run for the Rare t-shirt! You can pick up your t-shirt at the start of run or at the Haley’s Heroes Foundation office. ConKraft Construction – 1805 22nd St SE, Salem, OR 97302 Salem, Oregon 97302. For $5.00 your t-shirt can be mailed to you.
Register now!
