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Run for the Rare 2022!

February 28

Run for the Rare

Haley’s Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 27, 2022.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run anywhere! Run any distance! Run at any time! Post pictures at #RUNFORTHERARE!.






February 28
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VIrtual Event


Haley’s Heroes Foundation

Faces of Batten Disease CLN1