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November 2021

Giving Tuesday

November 30

Giving Tuesday Campaign Tuesday, November 30, 2021 Join us in our Giving Tuesday campaign on Facebook and help us raise funds for Haley's Heroes Foundation! Our next set of fundraising dollars will go towards developing clinical trials to find a cure for Batten Disease.

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February 2022

Run for the Rare 2022!

February 27, 2022
VIrtual Event
Run for the Rare

Haley's Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 27, 2022.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350…

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May 2022

Haley’s Heroes Foundation Auction 2022

May 3, 2022 @ 12:00 pm - 2:00 pm
Salem Convention Center, 200 Commercial St SE
Salem, OR 97301
+ Google Map

Batten May Day - Bid to Rid Virtual Auction - Save the Date! Tuesday, May 3, 2022 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Auction, to be held on May 3, 2022. . This is a very special event to increase awareness and raise funds to find a cure for Batten Disease. Batten Disease is a rare disorder that affects children. Children suffer from progressive neurological impairment that leads to blindness, seizures,…

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Faces of Batten Disease CLN1