Run for the Rare 2024!

Riverfront City Park 200 Water Street NE, Salem, OR, United States

In 2024, Run for the Rare is moving to June 9th. This is International Batten Awareness Day! We are excited to run/walk and fundraise in warmer weather! Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k or 1 mile run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? […]

Faces of Batten Disease CLN1