Latest Past Events

Run for the Rare 2024!

Riverfront City Park 200 Water Street NE, Salem

In 2024, Run for the Rare is moving to June 9th. This is International Batten Disease Awareness Day! We are excited to run/walk and fundraise in warmer weather! Haley's Heroes Foundation presents RUN FOR THE RARE, a 10k, 5k or 1 mile run or walk to support International Batten Disease Awareness Day.  Did you know […]

Haley’s Heroes Batten May Day Luncheon 2023

Salem Convention Center 200 Commercial St SE, Salem

Batten May Day Luncheon - Save the Date! Monday, May 1, 2023 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Luncheon to be held on May 1, 2023. This is a very special event to increase awareness and raise funds to find a cure for Batten Disease. Batten Disease […]

Run for the Rare 2023!

Riverfront City Park 200 Water Street NE, Salem

  Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k or 1 mile run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place […]

Faces of Batten Disease CLN1