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February 2022

Run for the Rare 2022!

February 27 @ 10:00 am - 1:00 pm
Riverfront City Park, 200 Water Street NE
Salem, OR 97301 United States

  Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k & 10k run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday, February 27, 2022.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare…

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May 2022

Haley’s Heroes Foundation Auction 2022

May 3 @ 12:00 pm - 2:00 pm
Salem Convention Center, 200 Commercial St SE
Salem, OR 97301
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Batten May Day Luncheon - Save the Date! Tuesday, May 3, 2022 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Luncheon to be held on May 3, 2022. . This is a very special event to increase awareness and raise funds to find a cure for Batten Disease. Batten Disease is a rare disorder that affects children. Children suffer from progressive neurological impairment that leads to blindness, seizures, dementia, loss of motor skills, loss…

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Faces of Batten Disease CLN1