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January 2021

Bingo to Beat Batten Disease

January 28 @ 6:30 pm - 7:30 pm
Virtual Event OR United States

Join us for Bingo to Beat Batten Disease Night! Thursday, January 28th from 6:30 - 7:30pm virtually. This is a family friendly event. You can print out the cards and use markers, nickels, or any fun objects to mark your cards. You can also play online without printing out the cards. We plan to play 5-6 games during the hour. An email will be sent on January 27th with access to your bingo cards and the Zoom room. Join us…

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February 2021

Run for the Rare!

February 28
VIrtual Event
Run for the Rare

Haley's Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk on National Rare Disease Day, February 28, 2021.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95%…

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