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February 2020
Run for the Rare!
Haley's Heroes Foundation presents RUN FOR THE RARE, a virutal rare to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run everywhere! Join us as we run on National Rare Disease Day, February 29, 2020. 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases…
Find out more »May 2020
Bingo to Beat Batten
Please join us on Saturday, May 16th 5:30-7:30 at Gilgamesh Brewing for a family friendly Bingo Night! Tickets: $20 includes 5 bingo cards, 1 blackout card, and a nacho/ taco bar dinner!
Find out more »September 2020
3rd Annual Bid to Rid Batten Auction
Haley’s Heroes Foundation invites you to its 3rd annual Bid to Rid Batten Silent and Live Auction Event to increase awareness of Batten Disease and funds for its cure. Last year was a tremendous success: with the help of our Heroes, over $140,000 was raised for Batten research. WHEN: Saturday September 26, 2020 WHERE: Salem Convention Center (200 Commercial St SE, Salem, OR 97301) WHAT: A special evening of drinks, dinner, networking, and exciting auction items. Our request: Help us…
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