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January 2021
Bingo to Beat Batten Disease
Join us for Bingo to Beat Batten Disease Night! Thursday, January 28th from 6:30 - 7:30pm virtually. This is a family friendly event. You can print out the cards and use markers, nickels, or any fun objects to mark your cards. You can also play online without printing out the cards. We plan to play 5-6 games during the hour. An email will be sent on January 27th with access to your bingo cards and the Zoom room. Join us…
Find out more »February 2021
Run for the Rare!
Haley's Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk on National Rare Disease Day, February 28, 2021. 1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95%…
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