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Run for the Rare 2024!

June 9, 2024 @ 12:00 pm - 1:00 pm

Run for the Rare

In 2024, Run for the Rare is moving to June 9th. This is International Batten Awareness Day! We are excited to run/walk and fundraise in warmer weather!

Haley’s Heroes Foundation presents RUN FOR THE RARE, a 5k or 1 mile run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let’s run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on Sunday,  June 9th.  1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run or walk anywhere! Run or walk any distance! Run or walk at any time! Post pictures at #RUNFORTHERARE!.  You can run with us or choose a virtual run!!

The run will begin and end by the pavilion in the North Meadow of the Riverfront City Park!

 

 

 

Details

Date:
June 9, 2024
Time:
12:00 pm - 1:00 pm
Event Tags:
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Website:
haleysheroesfoundation.org

Organizer

Haley’s Heroes Foundation
View Organizer Website

Venue

Riverfront City Park
200 Water Street NE
Salem, OR 97301 United States
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Faces of Batten Disease CLN1