Loading Events

« All Events

Run for the Rare 2024!

June 9 @ 10:00 am - 1:00 pm

Run for the Rare

In 2024, Run for the Rare is moving to June 9th. This is International Batten Disease Awareness Day! We are excited to run/walk and fundraise in warmer weather!

Haley’s Heroes Foundation presents RUN FOR THE RARE, a 10k, 5k or 1 mile run or walk to support International Batten Disease Awareness Day.  Did you know that Rare is everywhere? So, let’s run or walk everywhere!   1 in 10 people have a rare disease and 50% of those are children. There are more than 7000 known rare diseases and an estimated 350 million people globally diagnosed with a rare disease. YET, 95% of all rare diseases don’t have a FDA approved treatment or cure. Let’s run to change the course of the lives for all those with rare disease. Run or walk anywhere! Run or walk any distance! Run or walk at any time! Post pictures at #RUNFORTHERARE!.  You can run with us or choose a virtual run!!

The run will begin and end by the Pavilion in the North Meadow of the Riverfront City Park!

New this year!  All participants will receive a voucher for On Any Sundae!

Photobooth provided by Stumptown Booth

Music provided by NW Mobile DJ’s!


Thank you to our sponsors!







June 9
10:00 am - 1:00 pm
Event Tags:
, ,


Haley’s Heroes Foundation
View Organizer Website


Riverfront City Park
200 Water Street NE
Salem, OR 97301 United States
+ Google Map

Faces of Batten Disease CLN1