Hood to Coast

Haley's Heroes Foundation runs Hood to Coast - the mother of all races! Hood to Coast chooses only a few select nonprofits for its fundraising teams. Haley's Heroes Foundation is lucky to be one of them this year. Support the fundraising efforts of this running team by donating now. Our goal is to raise $5,000 […]

All That Glitters

Salem Convention Center 200 Commercial St SE, Salem, OR

A night of food, drink, and fun for a good cause with silent and live auctions. Join us September 14 for a very special event at the Salem Convention Center. The 2nd Annual Bid to Rid Batten Auction Event will include a dinner, drinks, music, and both a silent and live auction, all to increase awareness […]


Gail Archer In Concert

St. Paul's Episcopal Church 1444 Liberty St SE, Salem, OR

Join us for a special night of music in support of the Haley's Heroes Foundation! Organ concert at St. Paul's Episcopal Church presented by Gail Archer, Organist and Music Faculty at Columbia University in New York, NY. Music by J. S. Bach, Mary Howe, and Max Reger. You can purchase tickets at the door or […]



Salem Convention Center 200 Commercial St SE, Salem, OR

TEDxSalem! Hear from Haley's Heroes Foundation founder Melissa Pollman as she explains how rare disease, research, and hope are connected. Watch the video!

$45 – $100

Run for the Rare!

VIrtual Event

**Update** Due to the recent storms around the Pacific Northwest we have opted to move this event to be a 100% Virtual Event! You can still sign up and run or walk the event at any location, even on the treadmill!! Haley's Heroes Foundation presents RUN FOR THE RARE, a virutal run to support Rare […]

Haley’s Heroes Foundation Auction

Batten May Day - Bid to Rid Virtual Auction Saturday, May 1, 2021   The Live Auction is Open! You can start bidding on your favorite silent auction item and preview the items that will be available during the live auction!  Start bidding now for this great cause!  http://bidpal.net/battenmayday     Watch the auction!   The […]

Hops for Hope 2021

b2 Taphouse & Brewery 1170 Boone Rd SE, Salem, OR

Save the Date! Wednesday, September 22, 2021 at b2 Taphouse! 4:00pm - 9:00pm Join us at b2 Taphouse & Brewery for a night of fun, food, and drink. b2 is generously donating 20% of food and drink purchases this evening to the Haley's Heroes Foundation. Get a free b2 pint glass with a $20 donation […]

Giving Tuesday

Giving Tuesday Campaign Tuesday, November 30, 2021 Join us in our Giving Tuesday campaign on Facebook and help us raise funds for Haley's Heroes Foundation! Our next set of fundraising dollars will go towards developing clinical trials to find a cure for Batten Disease.

Run for the Rare 2022!

Riverfront City Park 200 Water Street NE, Salem, OR

  Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k & 10k run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's run or walk everywhere! Join us as we run or walk to celebrate National Rare Disease Day. Run for the Rare will take place on […]


Haley’s Heroes Batten May Day Luncheon 2022

Salem Convention Center 200 Commercial St SE, Salem, OR

Batten May Day Luncheon - Save the Date! Tuesday, May 3, 2022 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Luncheon to be held on May 3, 2022. This is a very special event to increase awareness and raise funds to find a cure for Batten Disease. Batten Disease […]

Faces of Batten Disease CLN1