Latest Past Events

Haley’s Heroes Batten May Day Luncheon 2022

Salem Convention Center 200 Commercial St SE, Salem

Batten May Day Luncheon - Save the Date! Tuesday, May 3, 2022 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Luncheon to be held […]

Run for the Rare 2022!

Riverfront City Park 200 Water Street NE, Salem

  Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k & 10k run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, let's […]


Giving Tuesday

Giving Tuesday Campaign Tuesday, November 30, 2021 Join us in our Giving Tuesday campaign on Facebook and help us raise funds for Haley's Heroes Foundation! Our next set of fundraising […]

Faces of Batten Disease CLN1