Run for the Rare 2023!

Riverfront City Park 200 Water Street NE, Salem, OR, United States

  Haley's Heroes Foundation presents RUN FOR THE RARE, a 5k or 1 mile run or walk to support Rare Disease awareness. Did you know that Rare is everywhere? So, […]

Haley’s Heroes Batten May Day Luncheon 2023

Salem Convention Center 200 Commercial St SE, Salem, OR

Batten May Day Luncheon - Save the Date! Monday, May 1, 2023 - 12:00pm   The Haley’s Heroes Foundation invites your support for its Batten May Day Luncheon to be held […]

Run for the Rare 2024!

Riverfront City Park 200 Water Street NE, Salem, OR, United States

In 2024, Run for the Rare is moving to June 9th. This is International Batten Disease Awareness Day! We are excited to run/walk and fundraise in warmer weather! Haley's Heroes […]

Faces of Batten Disease CLN1