Run for the Rare 2024!

Riverfront City Park 200 Water Street NE, Salem, OR, United States

In 2024, Run for the Rare is moving to June 9th. This is International Batten Disease Awareness Day! We are excited to run/walk and fundraise in warmer weather! Haley's Heroes […]

Run for the Rare 2025!

Riverfront City Park 200 Water Street NE, Salem, OR, United States

Save the Date!!! In 2025, Run for the Rare is moving to June 8th.  We are excited to run/walk and fundraise in warmer weather! Last year was a big success! […]

Faces of Batten Disease CLN1